"I'm ready for this to end."
Earlier today Mom wanted to sit up. Her back has really been hurting her, so much that she's lying on her side right now, and for the very first time since the palliative care began she cried. Dad just knelt next to the bed and held her while Aunt Kim held her hand.
A little while later she said "I wanna get up."
Dad: "What do you want to do?"
Mom: "I wanna get up."
Dad: "What do you want to do?"
Mom: "Get up."
Dad: "I know you want to get up. What do you want to do when you get up?"
She didn't answer.
We were all positive she'd be gone by this morning. Eight of us crammed into the family room around her bed sleeping on top of sleeping bags and chairs and couches, often just sitting up to make sure her chest was still rising. Suddenly at 5:30 this morning she sat up in bed and demanded water. Later, when the nurse came, her blood pressure was better, as was her chest cavity when she breathed. She was fairly active today, getting up a few times for the bathroom, spending time in the rocker, and at one point just standing next to the bed holding onto Dad for dear life.
Yesterday she kept saying "I'm sorry". Over and over, "I'm sorry, I'm sorry," and we kept stopping whatever we were doing just to kneel down in front of her, try to get her attention, and then tell her with gentle force that she has absolutely
nothing to be sorry about. This isn't her fault, she didn't choose this and we're not going to take her out back and shoot her like a lame horse (we didn't actually say that last part).
About an hour ago the last member of Mom's family finally arrived. Polly and Ken, new grandparents, tore themselves away from their hospitalized grandchild in Maryland and drove here, making it in time for dinner. We were very glad to finally see them, and to see the pictures of our beautiful new great-grandchild, great niece, cousin that they brought along with them.
We're still waiting. Mom's still here, she still gets up, still breathes, often she still talks! And it's not just the "I wanna get up" "drink" "bathroom" "yes" "no" and "I wanna go home" stuff it usually is. Today the nurse changed her medication and its frequency and Mom asked, quite clearly, "How often?". Sometimes she's here, but most of the time she's not. We're pretty sure she's waiting for something. Perhaps she was waiting to see her sister Polly. If that's the case then it definitely won't be long. If not, we have no idea. She passed her original time line days ago. She's a fighter. Dad called her the energizer bunny.
I know I keep saying that I'm ready for her to go. She's in pain, nothing really helps, she's not really here. Her water intake is less, sleeping is more. She looks terrible, nothing like the woman I will forever keep in my memory to block out this skeletal image. I stand by my feelings, though I know that once it finally happens the strength I have held for this long will disappear all at once and I'll probably leave to go drive really fast when I'm not blinded by tears. Or maybe it won't. There's really no way to know how I'll feel until it happens. Maybe I'll be numb. Maybe I'll be fine. Maybe I'll be glad. Not glad that she's gone, but glad that she's out of her misery. Maybe.